This is a brief post to let you know that I will be starting chemotherapy treatments related to my renal cell carcinoma (HLRCC). I am so fortunate to be connected with the National Institutes of Health in Bethesda, Maryland, as without their research and diligent care I would be seriously ill by now. This research facility is a prime example of your tax dollars at work. The genetic link to this cancer was just identified in the early 2000's.
After three surgeries the doctors found a recurrence of "hot" lymph nodes just three months after my surgery in February. Another surgery isn't an option. Following scans last week, I have learned I am eligible to be in a trial that will combine 2 drugs, Avastin and Erlotinib. My first chemo will be the week of August 1. I will return to Bethesda every four weeks, with an injection done here locally after two weeks. After the first few months, the injections will be eight weeks apart for several months. I won't know how long the chemo sessions will continue until future scans and evaluations are done.
I'm feeling positive about this avenue, as the results of this trial have so far been positive. I'll be just the 12th or so person to be targeted for this type of cancer. It's rare--only about a hundred families worldwide are known to have it. Lucky, huh?
Throughout my dealings with these health issues I have felt love and support from friends and family. Your caring and prayers have strengthened and encouraged me. Thank you for all your caring and kindness.
I will update you when I have more to share. Love to you.
Gayle
P.S. If you have questions you may post on this site, or email me at fgwing@charter.net
